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Leave a Comment Comments September 14, 2010 at 3:24 am( 1 ) Mary Landis says: Oh, my. PR was developed by me about 3 1/2 years back along with a ten-year situation of fibromyalgia. I believed my fibromyalgia had just worsened. My physician took plenty of blood tests to discover the thing that was wrong, and identified me with PM. Three different viruses may induce PM that will be a car resistant situation, In the event that you read about PM around the Mayo clinic website. I’d the youth disease. Pm is often treated with prednisone, but DONT TAKE IT, when you yourself have fibromyalgia, although it initialy appears like a magic cure. Dr. Teitalbaum claims that immune systems happen to be affected with fibromyalgia. On prednosone, my immunity system totally colapsed. I’ll produce more, but am giving this today.
September 14, 2010 at 1:46 pm( 2 ) Nina says: I’ve had FM for a long time in addition to AS and other unpleasant back conditions but after scanning this publishing and Dr. Teitalbaum’s book, I’m concerned. I’ve been on prednisone and have been weaning myself off of it now just getting 2.5 mg daily for suffering from irritation. I discover a marked escalation in extreme pain but will carry on to wear from the prednisone. Thanks for that post.
September 17, 2010 at 5:07 pm( 3 ) louise says:
I was told this season that i’ve got polymyalgia rheumatica
i’ve had this problem for three years and the suffering is really poor that you dont wish to go but you’ve to hold on moveing about or it’ll be worst
it just began with a very bad cold, tryed plenty of diffirant pills but nothing joints to help make the pain disappear for long i’ve great days and bad days when i just don’t wish to do anything more
September 17, 2010 at 7:02 pm( 4 ) Lucie says: It wouldn’t shock me one bit easily also have this along with fibromyalgia…I always have swelling within the oddest places that just don’t “fit the fibro profile” including and not restricting my ankles, round the base it self and then some. It numbers there wouldn’t be a dependable check for this either including with fibromyalgia..we may send a person to the moon but we can’t yet identify a lot of these problems? What’s wrong with this picture I ask???????
September 18, 2010 at 9:13 am( 5 ) Lucy says: Thanks! I’d an excellent time celebrating with my children at a restaurant.
And about Lucie’s remark, my shins also outstanding, although not as poor as my upper arms, shoulders and foot of the neck. And easily peal significantly more than a handful of carrots, for instance, my fingers, top of my wrists and top of my fingers swell immediately, aside from the pain. I can’t use the majority of necklaces or rings or bracelets. I’ve to consider them first (in my own hand) to ensure they won’t create extra swelling and boost the suffering.
I decided to not use steroids or any medicine as a therapy. PMR does not have any remedy. Take some ibuprofen, once the pain is an excessive amount of I take a hot shower, get my favorite ice-cream and pay attention to my favorite music. In the course of time the pain may reduce, and then I move on.
September 18, 2010 at 11:19 am( 6 ) Lee Ann Myers says: I was 48 when I first started having issues. I harm all over, was tired all of the full time, had discomfort in my back along my shoulders. I also had had tiles a couple years before that had commenced on my right shoulder blade. But my primary sign was my fingers and arms were swelled nearly all of the time, particularly in the day. I visited the Dr. convinced that I may have rheumatoid arthitis. He did a large amount of tests and created a diagonsis of polymalgia centered on my sed price that was sky-high. I was handed predisone which appeared to support in the beginning, but I got to the stage that I couldn’t tolerate it. I also felt like I’d the stomach flu all of the time. I wound up likely to see a rheumatoligist who then decided that I’d fibro centered on my sensitive things. He also wasn’t a good person. He pay my complaints of pain, explained that I needed was to harder and to think good. Obviously, I really was a wreck at that time. I’d got to the level that I was having a difficult time making it to function when it was all I could just do getting away from bed each morning. I’d a work until you were contagious where calling in sick wasn’t on choice. I were left with a Dr. who believes what I say and treats me like an individual. We worked together and I will at the very least purpose of all days. I am on impairment today and also wound up quitting my work. To create a long tale short, I wonder if I’ve both poly and fibro. My sed price still runs high and they’ll swell and hurt basically do much with my arms. My legs would be the same manner. I understand what I’ll question my Dr. on my next visit. I didn’t understand that you might have both. P.S. Thanks for hearing me.
September 18, 2010 at 2:55 pm( 7 ) shoshana says: I’ve had FMS for many many years – a lot of them without understanding but definitely suspecting. Going back 2 yrs I’ve had swelling in foot – and particularly in my left knee which I’ve broken three times (due to my insufficient vertigo) and stability. the health practitioners say that I must expect my ankle to become swelled up (and my leg?) due to all the trauma. I’ve to simply take anti inflammation medicine twice a day with meals simply to complete the day. who understands what I have?? the health practitioners undoubtedly don’t know!!
September 18, 2010 at 8:43 pm( 8 ) pam says: I’ve an uncle and a cousin sister and (brother of my dad) who both have poly and I’ve had fibro and cfs for 3 and 17 years respectively. Is is then likely I’ll continue to build up poly like my mother and uncle? Im 45 today but my mother and uncle have been in their 70′s. My child is 24 now and we believe she’s had fibro for the previous 18 months however they won’t refer her to an advisor for analysis, even though are offering her low-dose amatryptaline. Identification say we’ve a family “history” or even genealogical wouldnt you?
September 23, 2010 at 6:20 am( 9 ) dollar – South Afirca says: you it surely hurts to stay pain and no body believe you. i can’t even so i would rather be close to the one’s who know me visit my other household trigger i know i don’t have stability. I’ve all of the over syptoms and i was informed 8yrs straight back that i’ve FMS but suffered for yesteryear 18yrs without having an idea. I truly thanks men for sharing your experiences.
my current problem is shins which become swollen and are really painfull. I’ve some mounds on my thighs which keep a place as though i burn up myself. this mounds begin as though some thing chew me, the occur inside my skin and after some times i see a dead skin arising. i can’t wear a small now it appears as though i’ve burned areas. the places aren’t painfull but when it’s warm they are become red. i discover them last winter and they end but they straight back again this winter.
I’m a black south african-american girls. this doesn’t strain me since i’ve read about my condition. sory i also provide psoriasis and psoriathic arthritis. when i was small i’d juvenile polyarthritis. i believe this i all connected to (auto-immune program). The one thing that keeps me going is that i head to work and still awaken. i don’t get tired constantly some times since i complement, i also sleep well. the onlt serious problem may be the 24/7 suffering in most of my joints particularly ankles,shoulders,fingers and spine.
I HOPE FOR SEVERAL PEOPLE TO BECOME HEALED, IN THE TITLE OF JESUS CHRIST. HE SAID HE’LL NEVER ABANDON OR FORSAKE US JUST PUT YOUR RELY UPON HIM HE’LL DO THE REMAINDER.
September 24, 2010 at 4:42 pm( 10 ) kajem5gma says: Diagnosed w/PMR about 6 wks. Before. Getting prednisone; dislike this medicine! Desire to have dose reduced fleetingly. Unwanted effects terrible.
Pain/problems with neck, supply, throat muscles really started two to three years back after a very demanding time in my own life: tiles assault end of Dec. 2007; fleetingly partner identified w/cancer & died within a month. Genealogy of auto-immune illness (sister who died). May tension play a large part within this PMR?
September 29, 2010 at 11:26 am( 11 ) lynette stone says: I need your help instead of making a comment.I can’t get a Doctor to give me any medicine that really helps my Fibro pain.I had a spinal fusion completed in February and the Doctor gave me Percosett.It helps my Fibro pain and back pain significantly but now my back Doctor said I’ve to go to pain management.I know Doctors don’t like to prescribe Opiates for Fibro but it’s the only drug I’ve taken that really helps my pain.Can you give me any guidance as to what I must say or not say to the Doctor? I really discover that an Opiate assists me so much.I am in a position to function more when I take it.Your advice will be greatly appreciated.
October 4, 2010 at 7:09 pm( 12 ) Adrienne Dellwo says:
It’s true that lots of doctors don’t prefer to prescribe drugs for fibromyalgia. Attempt to maintain the focus, simply because they help along with your back pain. A specialist must (I hope!) realize that any discomfort will ostensibly aggravate fibromyalgia, then when your straight back is worse your fibro will be worse. Ideally, the expert will take a look at you as a spinal fusion individual who also offers fibro and will handle your back pain appropriately.
Most useful of luck for you!
October 14, 2010 at 10:05 am( 13 ) Benia Zouras says:
As I’ve tender, I’ve Fibro and have already been identified by my dermatologist with Erythema Nodosum, slightly red lumps underneath the skin on my lower right leg. I’ve been performing much reading on them and noticed they’re somewhat warm to the contact too, and whenever you tough them lightly appear a bit like burns off, whilst the mounds aren’t obvious, they’re found. Can this be what you’ve got?
They’re related to attacks – such a thing from strep to tuberculosis – in addition to other problems like Lupus and IBD.
Lookup EN and make certain you get checked for other things related to this, if you suspect you may have it. Most useful of luck for you.
October 14, 2010 at 11:27 am( 14 ) lynette stone says: I wanted to follow-up with you regarding my last remarks on trying to get a Doctor to give me Percosette which contolls my back and Fibro pain wonderfully.Well,The Pain Management Doctor did precisely what I thought he’d do.He told me he’d not prescribe it.He attempted to get me to use Steroids,which make me sick.So that was a waste of $40.00.So I went to see my Primary-care Doctor and I ostensibly did a “Presentation” for her.I got my data which was all from your own publication, and outlined it with yellow marker and offered my empty bottle of Percosette and my bottle of Ultram and told her that this mixture of medicines nearly lets me feel just like a regular individual when taken together.Unbelievably she made me sign a MEDICAL CONTRACT and recommended me one tablet a day.This agreement requires that I should see her every 3 weeks and if she requests it, that I can be drug examined to see if I’m abusing it.Because of the drug issue in this country those people who actually need medicine have to experience with pain and be denied what’ll support us.I have endured for 5 years now.It is ridiculous what I’ve had to go through to get pain relief!
October 19, 2010 at 5:23 pm( 15 ) Doris Bryant says: I was recently identified as having PMR. Iam a practicing Nichiren Buddhist & 57 years previous. I found the first one & two rheumatologist said I’d require a low dosage steroid. The 2nd said I’d require a sleep study. I plumped for the rest research since I’ve diabetes, & CHF, obesity. Now I’m on a Bipap device for moderate anti snoring. It had been suggested that I decide to try a molecularly distilled fish-oil product since I’m currently on an aspirin regime & more aspirin might influence my reading & more worsen my belly problems. I simply take Coreg, Victoza, Lasix, Klor-Con M20, Florastor, Vitamin N 2,000 items a day, Atacand, & Simvastatin along side discomfort @ 325mg. I don’t wish to actually be on steroids again. I had been recommended 80mgs for fourteen days then removed cold-turkey for a biopsy. The raised blood sugar & withdrawal, withdraw was terrible! So what can I do? Because 4am to-day, I’ve experienced significant hip pain, neck pain & reasonable throat & the tightness in my own entire body makes it acutely difficult to go or rise from sitting. I can’t sleep well for significantly more than 2/3 hours. If I’d vasculitis despite a LP to determine the health practitioners don’t understand what’s creating my extremely large sedamentation rate because the test was negative. What must I do? I realize that my chanting Nam Myiho Renge Kyo will result in a successful & final answer, but Buddhism is REASON & religion so I must do something also. I want the wisdom of an aware doctor & compassionate. Thanks.
October 3, 2011 at 4:54 am( 16 ) Mary says:
The problem along with your hip might be because of the simvastatin. I used to be only removed this terrible med after only 2 weeks. Because my hip muscles would no further help me…there are many interenet websites documenting the muscular unwanted effects of simvastatin, I had been compelled to work with a cane. I really hope you will find some relief.
October 20, 2010 at 12:51 pm( 17 ) LISA T says: I’m 48 and I haven’t been identified as having PMR officialy, my doctor explained theres no way i’ve it since i’m not 50. Are you kidding me i left his office so furious because my signs match to a tee. I got to models of prednisone the ache went away within hours, by the conclusion of the prescription I couldn’t watch for it to be gone. It’s been 3 months because the pain began once the pain gets a lot of I now keep ibuprofen in my own program 24/7 and also simply take tremodol. I want a lot of rest now actually can’t get enough. Even though i want no body experienced like me it’s nice to know from the others using the same problems. ATTEMPT TO KEEP YOUR FACE UP IT CAN’T LAST FOREVER!!!!!
October 20, 2010 at 11:20 pm( 18 ) Lucy says:
Both sed rate and reactive d protein (RCP) are actually saturated in PMR. To acquire a precise consequence of you RCP you must have an Ultrasensitive RCP test, not the standard test. I’ve had my sed price over 45 since I’m 27 years of age (now 48) and my RCP right now is in 6.3, a lot more than twice the greatest acceptable level. Both problems together is PMR without a doubt.
I decided to not take steroids. For me personally it’s warm baths and 1,000 mg ibuprofen once the suffering is a significant amount of. I take advantage of it for a couple of days and the moment the suffering is manageable, I quit getting ibuprofen. Your situation is much more complex than mine, which means you should be acutely careful to combine further medications.
December 22, 2010 at 2:33 pm( 19 ) yolanda says: hello i don’t know where you can started. I’ve had to deal with muscle aches for straight back when I can remember. She was told because I actually do sports when my mom took me to the physician. Since I’m 40 it’s even worst. Visited hospitals several time was even asked did i’ve a mental record. Refused suffering medications before. Ultimately a nice woman was on-duty one day i believed it was going to be just like all of the the others moments, started to tell stuff to me that i’d been attempting to tell for a long time. as she began to talk i began to cry finally somebody who don’t believe i’m insane. all I will do now’s thank GOD. i don’t understand what the thing is yet but this doctor appt i’ll maintain. About the 27th the tests will start
April 9, 2011 at 9:32 pm( 20 ) Nancy says: I’ve only been dx with pmr. My mother also offers it. I’ve had fms for two decades. I’m 58. I simply assumed my fms was getting worse. I’ve trouble sleeping, can’t appear to “shut my mind off” during the night to drift off. Does someone else have this sign? I also simply take Lexapro. I used to be commenced on a tapering dose of prednisone, beginning with 20mg. I should say, in two days, I’m felling better-than I’ve in years. It’s been such a long time, I don’t remember what coping with pain felt like. I hope there is more awareness for individuals that suffer with chronic pain. I’m a nurse and some health practitioners that I use, still don’t have confidence in fms. My sed price continues to be elevated for a long time. My hsCRP began coming up about 5 years back.
February 3, 2012 at 4:06 am( 21 ) sharon says: I’ve pmr and was recently identified as having osteo arthrithis. I can’t stand, sit, or walk without pain. I’m on celebrex, cymbalta and steroids. To date I’ve hardly any development.
March 14, 2012 at 5:09 pm( 22 ) phyllis Lyew says: I was identified as having PMR over 10 years before. I had been placed on prednisone 10mg and this served perfectly. Using the aid of my physician I tried many times to get off it. I’m now however on 5 mg. with plenty of suffering that I barely get a good night’s rest. Some one suggested I ask my physician to provide Tramado to me that will be a narcotic.. I’m worried this is going to do injury to a number of my organs. Any ideas?
March 14, 2012 at 6:45 pm( 23 ) Lucy says: phyllis Lyew, Tramadol will probably support some the very first few months, your human anatomy will eventually learn to get accustomed to it, like it happens with all medications. However you may wish to ask your physician and give a try to it for a couple of days, and observe how it works in your body. Since to date none been employed by for me, i’ve learned to cope with my discomfort without medication.
November 2, 2012 at 12:50 am( 24 ) Prafulla says: I’m 37.yrs old. Because past couple weeks I’m having physical discomfort in my left arm and left neck and also upper straight back. Now I’m noticing a gentle swelling on the foundation and shoulder of my neck on the left-side. I experienced health check-up and X-ray also. Every thing appears normal except ESR that will be 64. But I don’t have any signs. I’m getting homeopathy medication at this time.
March 12, 2013 at 8:54 am( 25 ) Jenny says: My Mom endured with Fibro for the last 4 years with no aid at all from health practitioners She was fundamentally in a fetal position refusing to eat speaking or walking We’d her taken fully to the clinic three times in the last year and at the last visit a physician was adequate to call in a specialist My Mom had observed several the last one said she was performing. Anyway this doctor suggested a Thyroid check A big nodule was discovered and a Radioactive tablet swallowed and within months the pain was gone and we’ve my mother straight back She’s still poor and the negative effects of the Radium pill are constipation and fatigue hair and nail damage dry skin but these are nothing when compared with the agony she went nevertheless for 4 years with no concern as there weren’t bandages, or marks or proof of why her toes were paining etc In the event that you have Fibro or Polymyalgia please have your thyroid checked it might well help Why didn’t one doctor examine my mom’s thyroid?
April 1, 2013 at 2:22 pm( 26 ) Meg C. says: 32 yr previous child –has lupus since 9 yr. It took couple of years for that correct screening.. Earlier this wk she couldn’t get out of bed or off the sofa with out help. 3/31/13 I described PMR ( i’m a nurse and had a rehabilitation contain it ). yesterday. She visited her Rhemo who poo-poo it. saying she’s too small. Girl said she was too small at 9 for lupus. He offered a chance to her in the supply for suffering.. 5mg of pred. No blood test.. Awful.. Child remaining clutter for Mayo in FLA for appt. I’m like telling her to simply take more pred to find out if pain disappears.. Can’t appear to see websites on here about young/PMR..
thanks orlando, FLA April 4, 2013 at 12:16 am( 27 ) Yvette says: I’ve been having problems since my late teens that were only available in my sides. I’m now in my own early 60s. My sed price has usually abeen between 37-48 and now the problems are usually in my own shoulders, straight back, legs and low back/pelvis/hips. When standing too much time my legs could be swelled up. I observed recently that I appear to reduce my stability quickly and my focus is becoming bad. Recently, I’d an MRI of my low-back and x-ray of my kness and my ortho seems I might be getting osteoporosis. My endo seems I’ve PFR and desired to set me on prednisone but as I’m a bit worried about the4 unwanted effects for now I’ve declined.
May be the loss of stability a sypmtom of PFR? I don’t view it outlined and wonder if maybe another thing goes on. May 22, 2013 at 12:19 pm( 28 ) Kay Robnett says:
I’ve exactly the same symptoms as yvette for a long time, but additionally now have bad stability problems and memory and concentration extremely bad. I need support so bad, for the reason that my loved ones just thinks I’ve psychological difficulties and have distanced themselves from me. It breaks my heart not to get my kiddies and grandchild to go to and just believe since I don’t feel like doing all that requires to be achieved in washing my home, etc I’m mentally-ill and lazy. I’d like to possess some answers. I visit a rheumatologist, considering that I must have various other issues besides FB (that I was identified as having two decades ago.) I’ve terrible pain in my shoulders and neck, pain and swelling in my own legs, arms and legs. Some times I don’t feel like getting out of bed, but the pain and stiffness could be past intolerable, if I don’t. I’ve to test and move, but hurt therefore bad that I don’t feel like it. I must manage to have a life and look after. I don’t feel just like I’ve much standard of living nowadays. I’ve a Sister with MS and my Mother is in a nursing home with Parkinson’s. Her Mother, my Grandmother, also had Parkinson’s.
I imagined while at rheumatologist, they may find RA, because I’d tested positive for the antigen before, but they stated no RA, so I’m continuing to visit my program physician and he maintains and medicates bloodwork done. I hope for recovery and for respite from this situation. I was prrescribed steroids for suffering, which served some, but I acquired 30 pounds. in a month…..I need support. Thanks for hearing.
Might 8, 2013 at 1:10 am( 29 ) amanda says: Well, I’m 32 years old, my dr, who’s awesome..discovered I’d fibromyalgia about 2 years before, it’s been super hard to cope with. My feet have actually been hurting me recently, so my doctor thinks so he’s gonna decide to try steroids, I might have PR. Therefore, we shall observe it goes.
June 3, 2013 at 7:54 am( 30 ) Molly says: Going back six months I’ve been on pain-killers had 3 blood tests. A ct check seen professionals medicines various drs urine assessments actually teeth pulled a dosage of steroids and regular trips to the neighborhood gp trying to determine why i was in so much pain and finally whatever the reality im just not exactly 24yrs previous my Doctor has come to the final outcome i’d created polymyalgia rheumatica im so happy to finally have a solution and only commenting since it believed to in the event that you were young
July 14, 2013 at 2:20 am( 31 ) Pat says: I’m 67 and was identified as having fibro/polymyalgia three years ago. The pain was terrible. Prednisone was a wonder for me. I’ve been totally off prednisone for just two months and every thing is returning. I understand about the hazards of prednisone but what about standard of living. I’ve to create a decision quickly. At this time I’m trying aspirin. I dislike the fibro medications. I hope there is a cure for everybody. My heart is out to the woman who has difficulty keeping her grandchild and to the young adults who shouldn’t need certainly to suffer.